Title

Would People with Parkinson's Disease Benefit from Palliative Care?

Document Type

Journal Article

Publisher

Sage

Faculty

Computing, Health and Science

School

Nursing, Midwifery and Postgraduate Medicine, WA Centre for Cancer and Palliative Care

RAS ID

4806

Comments

This article was originally published as: Hudson, P., Toye, C. M., & Kristjanson, L. (2006). Would people with Parkinson's disease benefit from palliative care?. Palliative Medicine, 20(2), 87-94. Original article available here

Abstract

Parkinson's disease (PD) is a chronic, progressive, degenerative disorder of the nervous system, causing substantial morbidity and has the capacity to shorten life. People with PD and their families can find the disease devastating. Nevertheless, this population of patients is not usually considered a group to be supported by palliative care specialists. But the nature of the illness and the challenges of managing its many physical and psychological effects raises questions about the potential benefits of a palliative care approach. The purpose of this project was to describe the experience of PD and consider the relevance of palliative care for this population. Semi-structured interviews were conducted with eight people with PD, 21 family caregivers and six health professionals. Five themes were developed from the data analysis: (1) emotional impact of diagnosis; (2) staying connected; (3) enduring financial hardship; (4) managing physical challenges; and (5) finding help for advanced stages. These data revealed that people with PD and family caregivers are confronted with similar issues to people with typical palliative care diagnoses, such as advanced cancer, and that a palliative approach may be helpful in the care of people with PD and their families.

DOI

10.1191/0269216306pm1108oa

 

Link to publisher version (DOI)

10.1191/0269216306pm1108oa