Title

A qualitative study of the post-treatment experiences and support needs of survivors of lymphoma

Document Type

Journal Article

Publisher

Elsevier

School

School of Nursing and Midwifery

Comments

Originally published as: Monterosso, L., Taylor, K., Platt, V., Lobb, E., Krishnasamy, M., Musiello, T., ... & Joske, D. (2017). A qualitative study of the post-treatment experiences and support needs of survivors of lymphoma. European Journal of Oncology Nursing, 28, 62-68. Original article available here

Abstract

Purpose

To explore the post-treatment experiences and preferences for follow-up support of lymphoma survivors.

Methods

Two focus groups were conducted with 17 participants to explore informational, psychological, emotional, social, practical and physical needs, 6–30 months post-treatment for lymphoma. Perceptions regarding a potential model of survivorship care were also elicited.

Results

Thematic content analysis revealed five key themes: Information; Loss and uncertainty; Family, support and post-treatment experience; Transition, connectivity and normalcy, and Person-centred post-treatment care. Participants described a sense of loss as they transitioned away from regular interaction with the hospital at the end of treatment, but also talked about the need to find a “new normal”. Establishing post-treatment support structures that can provide individualised information, support, reassurance and referrals to community and peer support were identified as a helpful way to navigate the transition from patient to post-treatment survivor.

Conclusions

Participants in our study articulated a need for a flexible approach to survivorship care, providing opportunities for individuals to access different types of support at different times post-treatment. Specialist post-treatment nurse care coordinators working across acute and community settings may offer one effective model of post-treatment support for survivors of haematological malignancies.

DOI

10.1016/j.ejon.2017.03.002