Title

Qualitative results from a phase II pilot randomised controlled trial of a lymphoma nurse-led model of survivorship care

Document Type

Journal Article

Publication Title

European Journal of Oncology Nursing

Publisher

Churchill Livingston

Place of Publication

United Kingdom

School

School of Nursing and Midwifery

RAS ID

29337

Comments

Taylor, K., Monterosso, L., & Bulsara, C. (2018). Qualitative results from a phase II pilot randomised controlled trial of a lymphoma nurse-led model of survivorship care. European Journal of Oncology Nursing, 35, 9-14. Available here.

Abstract

Purpose: To explore and describe lymphoma survivors’ thoughts and perceptions of the components of a nurse-led lymphoma survivorship clinic intervention. Methods: An exploratory, qualitative descriptive study using interviews from 10 participants who had transitioned post-treatment into the survivorship phase via a nurse-led lymphoma survivorship clinic intervention. Results: Thematic analysis revealed three major themes: Reassurance and individualised care; Information and support; and Empowerment. Participants described the reassurance they gained from having contact with a health professional post-treatment who individualised information and support. A survivorship care plan and treatment summary was developed for this study and was believed to be very patient-centred and helpful. This enabled participants to take back control of their health and well-being and to rebuild confidence. Conclusions: In this study, participants expressed a need for patient-centred follow-up care that addressed their concerns and supported them in the survivorship phase to get their life back on track. Nurse-led follow-up may offer a viable model of post-treatment survivorship care to lymphoma cancer survivors.

DOI

10.1016/j.ejon.2018.01.011

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