Title

Caregiving For The Terminally Ill: At What Cost?

Document Type

Journal Article

Faculty

Computing, Health and Science

School

School of Nursing, Midwifery and Postgrad Medicine, WA Centre for Cancer and Palliative Care

RAS ID

3571

Comments

This article was originally published as: Aoun, S. M., Kristjanson, L. J., Currow, D. C., & Hudson, P. L. (2005). Caregiving for the terminally ill: at what cost?. Palliative Medicine, 19(7), 551-555. Original article available here

Abstract

This literature review exposes the nature and extent of physical and psychosocial morbidity and economic disadvantage, home palliative caregivers suffer as a direct result of their caregiving role. Research has demonstrated that caregivers providing support to individuals receiving palliative care report unmet needs for information, communication, service provision and support from health and community services. Three sets of challenges are highlighted in this literature review which help explain why the needs of home palliative caregivers are largely unmet: (i) barriers to seeking help; (ii) a dearth of research-based interventions focused on reducing the negative aspects of caregiving; and (iii) a number of impediments to effective policy and service development for family caregivers. Furthermore, invited submissions from caregivers echoed and confirmed the issues reported in the literature. Recommendations for enhancing caregiver support are outlined.

DOI

10.1191/0269216305pm1053oa

 

Link to publisher version (DOI)

10.1191/0269216305pm1053oa