Title

The carer experience in end-of-life cancer caregiving: a discussion of the literature

Document Type

Journal Article

Publisher

Cancer Council Australia

Faculty

Computing, Health and Science

School

Nursing, Midwifery & Postgrad. Medicine/WA Centre for Cancer and Palliative Care

RAS ID

10645

Comments

This article was originally published as: Wilkinson, A. (2010). The carer experience in end-of-life cancer caregiving: a discussion of the literature. Cancer Forum, 34(2), 91-94. Original article available here

Abstract

Research into the experience of unpaid caregiving has been growing since the 1980s with the introduction of 'community care' policies in Australia and in olher Western societies. There is now a large body of research that sheds light on various aspects of the experience of cancer end-of-life caregiving. The aim of this article is to explore what is known about the roles, needs. adverse impacts and concerns of family caregivers providing care to advanced cancer patients at the end of life. Reviewed literature, published between 1990 and 2010, focused on end-of-life cancer caring in the home, but includes in-patient palliative care interventions. Where relevant, general end-of-life caregiving literature to supplement Ihe cancer specific research is included. Five major dimensions of Ihe end-of-life cancer carer experience are idenlified: the end-of-life cancer carer role, impacl of end-of-life caregiving; positive aspecls of caregiving; carer perceptions of need; and access to palliative care.

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