“Sometimes I feel grateful…”: Experiences of the adolescent siblings of children with autism spectrum disorder in Malaysia
ORCID : 0000-0003-2466-0225
Journal of Autism and Developmental Disorders
School of Medical and Health Sciences
University's incentive grant (GP-2020-K021244, first author)
Sibling relationships remain understudied in typically developing adolescents who have siblings with autism spectrum disorder (ASD). This study explored the lived experiences and perceptions of adolescents who have a brother or a sister with a diagnosis of ASD using semi-structured interviews. Using thematic analysis, the participants reported having difficulties communicating with their siblings. Feeling a mixture of emotions was common when interacting with their siblings with ASD and emotional self-regulation was a typical coping strategy utilized by these adolescents. Despite the challenges, having a sibling with ASD led to closer relationships between the siblings. These findings offer insights into these adolescents’ needs and how they may be best supported, informing the practice of speech-language pathology and other health professions.
Chu, S. Y., binti Kassim, S. N. Z., Gan, C. H., Fierro, V., Chan, C. M. H., & Hersh, D. (2023). “Sometimes I feel grateful…”: Experiences of the adolescent siblings of children with autism spectrum disorder in Malaysia. Journal of Autism and Developmental Disorders, 53, 795–807.