Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease

Abstract

Background: Motor neurone disease causes respiratory weakness that can lead to death. While non-invasive ventilation relieves symptoms, there are complex issues to consider prior to commencement. Aim: To identify what is known and understood about the clinician communication of non-invasive ventilation by people with motor neurone disease. Method: The Joanna Briggs Institute approach to systematic reviews was followed for literature retrieval and selection. Data sources: Research literature published between 1990-2019 in English from the Medline, CINAHL, ProQuest Research Library and the Cochrane Library of Systematic Reviews databases were used. Results: A total of two themes emerged: Communication challenges doctors face when discussing non-invasive ventilation withdrawal, and the importance of well-timed, effective communication by clinicians-specifically the influence clinicians have on family decision-making. Conclusions: Guidance on communications around palliative care, non-invasive ventilation introduction and withdrawal exist, however implementation is often not straightforward. Research into the communication surrounding non-invasive ventilation from those living with motor neuron disease, their families and clinicians is required to inform guideline implementation and practice.

RAS ID

52684

Document Type

Journal Article

Date of Publication

7-21-2022

Volume

28

Issue

7

PubMed ID

35861443

School

School of Medical and Health Sciences / School of Nursing and Midwifery

Copyright

subscription content

Publisher

MA Healthcare Ltd

Comments

Chapman, C., Bayes, S., & Sim, M. (2022). Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease. International Journal of Palliative Nursing, 28(7), 298-306. https://doi.org/10.12968/ijpn.2022.28.7.298

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Link to publisher version (DOI)

10.12968/ijpn.2022.28.7.298