Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease
International Journal of Palliative Nursing
MA Healthcare Ltd
School of Medical and Health Sciences / School of Nursing and Midwifery
Background: Motor neurone disease causes respiratory weakness that can lead to death. While non-invasive ventilation relieves symptoms, there are complex issues to consider prior to commencement. Aim: To identify what is known and understood about the clinician communication of non-invasive ventilation by people with motor neurone disease. Method: The Joanna Briggs Institute approach to systematic reviews was followed for literature retrieval and selection. Data sources: Research literature published between 1990-2019 in English from the Medline, CINAHL, ProQuest Research Library and the Cochrane Library of Systematic Reviews databases were used. Results: A total of two themes emerged: Communication challenges doctors face when discussing non-invasive ventilation withdrawal, and the importance of well-timed, effective communication by clinicians-specifically the influence clinicians have on family decision-making. Conclusions: Guidance on communications around palliative care, non-invasive ventilation introduction and withdrawal exist, however implementation is often not straightforward. Research into the communication surrounding non-invasive ventilation from those living with motor neuron disease, their families and clinicians is required to inform guideline implementation and practice.
Chapman, C., Bayes, S., & Sim, M. (2022). Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease. International Journal of Palliative Nursing, 28(7), 298-306. https://doi.org/10.12968/ijpn.2022.28.7.298