Abstract

Introduction: Patient involvement is a critical component of dementia research priority-setting exercises to ensure that research benefits are relevant and acceptable to those who need the most. This systematic review synthesises research priorities and preferences identified by people living with dementia and their caregivers. Methods: Guided by Joanna Briggs Institute methodology, and Preferred Reporting Items for Systematic Reviews and Meta-Analyses framework, we conducted a systematic search in five electronic databases: CINAHL, Medline, PsycINFO, Web of Science and Scopus. The reference lists of the included studies were also manually searched. We combined quantitative and qualitative data for synthesis and descriptive thematic analysis. Results: Eleven studies were included in this review. Findings are grouped into four main categories: Increase in knowledge, education, and awareness; Determining the cause; Sustainability of care; and Cure of dementia and related conditions. Conclusion: There is a need to respond to the stigma associated with dementia, which limits access to care and the quality of life for both people living with dementia and their caregivers. We need to work on changing public, private and workplace attitudes about dementia and encourage supporting and participating in dementia research. Future research should involve people living with dementia and their primary caregivers from culturally and linguistically diverse communities in priority-setting exercises.

Document Type

Journal Article

Date of Publication

1-1-2024

Volume

37

Issue

5

PubMed ID

38337159

Publication Title

Journal of Geriatric Psychiatry and Neurology

Publisher

Sage

School

School of Nursing and Midwifery / Centre for Research in Aged Care

RAS ID

64831

Creative Commons License

Creative Commons Attribution 4.0 License
This work is licensed under a Creative Commons Attribution 4.0 License.

Comments

Ghosh, M., Chejor, P., Baker, M., & Porock, D. (2024). A systematic review of dementia research priorities. Journal of Geriatric Psychiatry and Neurology, 37(5), 343-354. https://doi.org/10.1177/08919887241232647

First Page

343

Last Page

354

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Link to publisher version (DOI)

10.1177/08919887241232647