Document Type
Journal Article
Publication Title
Journal of Geriatric Psychiatry and Neurology
PubMed ID
38337159
Publisher
Sage
School
School of Nursing and Midwifery / Centre for Research in Aged Care
RAS ID
64831
Abstract
Introduction: Patient involvement is a critical component of dementia research priority-setting exercises to ensure that research benefits are relevant and acceptable to those who need the most. This systematic review synthesises research priorities and preferences identified by people living with dementia and their caregivers. Methods: Guided by Joanna Briggs Institute methodology, and Preferred Reporting Items for Systematic Reviews and Meta-Analyses framework, we conducted a systematic search in five electronic databases: CINAHL, Medline, PsycINFO, Web of Science and Scopus. The reference lists of the included studies were also manually searched. We combined quantitative and qualitative data for synthesis and descriptive thematic analysis. Results: Eleven studies were included in this review. Findings are grouped into four main categories: Increase in knowledge, education, and awareness; Determining the cause; Sustainability of care; and Cure of dementia and related conditions. Conclusion: There is a need to respond to the stigma associated with dementia, which limits access to care and the quality of life for both people living with dementia and their caregivers. We need to work on changing public, private and workplace attitudes about dementia and encourage supporting and participating in dementia research. Future research should involve people living with dementia and their primary caregivers from culturally and linguistically diverse communities in priority-setting exercises.
DOI
10.1177/08919887241232647
Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 License.
Comments
Ghosh, M., Chejor, P., Baker, M., & Porock, D. (2024). A systematic review of dementia research priorities. Journal of Geriatric Psychiatry and Neurology. Advance online publication. https://doi.org/10.1177/08919887241232647