The Australian traumatic brain injury initiative: Single data dictionary to predict outcome for people with moderate-severe traumatic brain injury

Document Type

Journal Article

Publication Title

Journal of Neurotrauma

PubMed ID

38117144

Publisher

Mary Ann Liebert, Inc.

School

Office of Deputy Vice-Chancellor (Students, Equity and Indigenous)

RAS ID

62359

Comments

Fitzgerald, M., Ponsford, J. L., Hill, R., Rushworth, N., Kendall, E., Armstrong, E., . . . Gabbe, B. J. (2024). The Australian traumatic brain injury initiative: Single data dictionary to predict outcome for people with moderate-severe traumatic brain injury. Journal of Neurotrauma. Advance online publication. https://doi.org/10.1089/neu.2023.0467

Abstract

In this series of eight articles, the Australian Traumatic Brain Injury Initiative (AUS-TBI) consortium describes the Australian approach used to select the common data elements collected acutely that have been shown to predict outcome following moderate-severe traumatic brain injury (TBI) across the lifespan. This article presents the unified single data dictionary, together with additional measures chosen to facilitate comparative effectiveness research and data linkage. Consultations with the AUS-TBI Lived Experience Expert Group provided insights on the merits and considerations regarding data elements for some of the study areas, as well as more general principles to guide the collection of data and the selection of meaningful measures. These are presented as a series of guiding principles and themes. The AUS-TBI Aboriginal and Torres Strait Islander Advisory Group identified a number of key points and considerations for the project approach specific to Aboriginal and Torres Strait Islander peoples, including key issues of data sovereignty and community involvement. These are outlined in the form of principles to guide selection of appropriate methodologies, data management, and governance. Implementation of the AUS-TBI approach aims to maximize ongoing data collection and linkage, to facilitate personalization of care and improved outcomes for people who experience moderate-severe TBI.

DOI

10.1089/neu.2023.0467

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