Author Identifier (ORCID)
James Smith: https://orcid.org/0000-0002-0448-8774
Abstract
A Consumer and Community Involvement program located in Australia supports consumers, community members and researchers to work in partnership with health research priorities, policy and practice. The program is positioned to enhance Consumer and Community Involvement (CCI) at individual, organisational, and system levels. Partners are key to the program’s development, growth and sustainment. This study explored various partner perspectives on their involvement within the CCI program, including individuals (consumers, researchers) organisations (universities, medical research institutes) and the system level (funding organisations) alongside CCI program coordinators (delivering the program) and high-level leaders (decision-makers/executive leaders/directors). Data were collected via two focus groups (10 consumer and community involvement members), 12 interviews (researchers, universities, funding organisations, and medical research institutes), nine qualitative proformas - open-text box surveys (CCI program coordinators (current and previous) and high-level leaders) between March-June 2024. Data were de-identified and Template Analysis was conducted and informed by the Consolidated Framework for Implementation Research. Two themes were produced: (1) ‘Consumer and Community Involvement program structures’ describes the structures of the inner setting (e.g., expertise and support offered, tailored partnerships), and the outer setting (e.g., funding policies, outer consumer and community networks, hub and spoke approach). (2) ‘Processes for connecting consumer/community and researchers’ describe the process (e.g., the communication channels and a bridge between consumer/community members and researchers). This study improves understanding of the planned and tailored structures and processes that embed CCI across individuals, organisations and system levels while highlighting opportunities to strengthen internal consumer connections and diversify consumer representation.
Document Type
Journal Article
Date of Publication
12-1-2025
Volume
25
Issue
1
Publication Title
BMC Health Services Research
Publisher
Springer
School
Centre for Precision Health
Funders
Medical Research Future Fund (MRF2019278)
Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 License.
Comments
Smith, J., Lance, H., & Hayes, S. (2025). Partners, coordinators and high-level leaders’ perspectives on a consumer and community involvement program in Australia: A qualitative evaluation using template analysis. BMC Health Services Research, 25. https://doi.org/10.1186/s12913-025-13685-7