Authors
RELEASE Collaboration
Marian C. Brady
Myzoon Ali
Kathryn VandenBerg
Linda J. Williams
Louise R. Williams
Masahiro Abo
Frank Becker
Audrey Bowen
Caitlin Brandenburg
Caterina Breitenstein
Stefanie Bruehl
David A. Copland
Tamara B. Cranfill
Marie di Pietro-Bachmann
Pamela Enderby
Joanne Fillingham
Federica Lucia Galli
Marialuisa Gandolfi
Bertrand Glize
Erin Godecke, Edith Cowan UniversityFollow
Neil Hawkins
Katerina Hilari
Jacqueline Hinckley
Simon Horton
David Howard
Petra Jaecks
Elizabeth Jefferies
Luis Mt Jesus
Maria Kambanaros
Eun Kyoung Kang
Eman M. Khedr
Anthony Pak-Hin Kong
Tarja Kukkonen
Marina Laganaro
Matthew A. Lambon-Ralph
Ann Charlotte Laska
Béatrice Leemann
Alexander P. Leff
Roxele R. Lima
Antje Lorenz
Brian MacWhinney
Rebecca Shisler Marshall
Flavia Mattioli
İlknur Maviş
Marcus Meinzer
Reza Nilipour
Enrique Noé
Nam-Jong Paik
Rebecca Palmer
Ilias Papathanasiou
Brigida F. Patricio
Isabel Pavão Martins
Cathy Price
Tatjana Prizl Jakovac
Elizabeth Rochon
Miranda L. Rose
Charlotte Rosso
Ilona Rubi-Fessen
Marina B. Ruiter
Claerwen Snell
Benjamin Stahl
Jerzy P. Szaflarski
Shirley A. Thomas
Mieke van de Sandt-Koenderman
Ineke van der Meulen
Evy Visch-Brink
Linda Worrall
Heather Harris Wright
Document Type
Journal Article
Publication Title
International Journal of Speech-Language Pathology
Volume
22
Issue
3
Publisher
Taylor & Francis
School
School of Medical and Health Sciences
RAS ID
45349
Funders
National Institute for Health Research (NIHR), Health Services and Delivery Research Programme (HS&DR–14/04/22) and the Tavistock Trust for Aphasia. Further information is available at https://www.journalslibrary.nihr.ac.uk/programmes/hsdr/140422/#/.
MCB and the NMAHP Research Unit is funded by the Chief Scientist Office, Scottish Government Health and Social Care Directorates.
Abstract
Purpose: Speech and language pathology (SLP) for aphasia is a complex intervention delivered to a heterogeneous population within diverse settings. Simplistic descriptions of participants and interventions in research hinder replication, interpretation of results, guideline and research developments through secondary data analyses. This study aimed to describe the availability of participant and intervention descriptors in existing aphasia research datasets.
Method: We systematically identified aphasia research datasets containing ≥10 participants with information on time since stroke and language ability. We extracted participant and SLP intervention descriptions and considered the availability of data compared to historical and current reporting standards. We developed an extension to the Template for Intervention Description and Replication checklist to support meaningful classification and synthesis of the SLP interventions to support secondary data analysis.
Result: Of 11, 314 identified records we screened 1131 full texts and received 75 dataset contributions. We extracted data from 99 additional public domain datasets. Participant age (97.1%) and sex (90.8%) were commonly available. Prior stroke (25.8%), living context (12.1%) and socio-economic status (2.3%) were rarely available. Therapy impairment target, frequency and duration were most commonly available but predominately described at group level. Home practice (46.3%) and tailoring (functional relevance 46.3%) were inconsistently available.
Conclusion: Gaps in the availability of participant and intervention details were significant, hampering clinical implementation of evidence into practice and development of our field of research. Improvements in the quality and consistency of participant and intervention data reported in aphasia research are required to maximise clinical implementation, replication in research and the generation of insights from secondary data analysis.
Systematic review registration: PROSPERO CRD42018110947
DOI
10.1080/17549507.2020.1762000
Creative Commons License
This work is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 4.0 License.
Comments
RELEASE Collaboration. (2020). Communicating simply, but not too simply: Reporting of participants and speech and language interventions for aphasia after stroke. International Journal of Speech-Language Pathology, 22(3), 302-312.
https://doi.org/10.1080/17549507.2020.1762000