Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices

Abstract

Objective: To describe contemporary consumer experiences and priorities of prostate cancer survivorship to inform the development of survivorship guidelines. Method: In a cross-sectional qualitative design, semi-structured interviews were undertaken with fifty prostate cancer support group leaders (50% response) across urban and rural/regional Australia. An interpretative phenomenological approach was used to identify participants' experiences and priorities of survivorship. Results: Three themes were identified for informing the development of prostate cancer survivorship guidelines: (a) the Experience of Diagnosis and Treatment, (b) Priorities for Survivorship and (c) Mechanisms for Support. Four priorities for prostate cancer survivorship were: delivering person and men-centred care; improving communication; improving care coordination; and facilitating access to care. Mechanisms for support were as follows: advocacy; peer support; prostate cancer specialist nurses; and communication training for health professionals. Conclusions: The lack of progress in changing prostate cancer survivorship outcomes for men will become increasingly problematic as this patient population group grows. Co-production provides a way forward to ensure relevance and accessibility for future survivorship initiatives. © 2020 John Wiley & Sons, Ltd.

Keywords

care coordination, guidelines, personalised care, prostate cancer, survivorshipadult, aged, Article, Australia, clinical article, consumer attitude, cooperation, cross-sectional study, female, health care access, health care facility, health care personnel, human, interpersonal communication, male, medical education, outcome assessment, patient advocacy, patient care, peer group, personalized medicine, practice guideline, prostate cancer, qualitative analysis, rural area, semi structured interview, social support, survivorship, urban area

Document Type

Journal Article

Date of Publication

1-1-2020

Publication Title

Psycho-Oncology

Publisher

John Wiley and Sons Ltd

School

Exercise Medicine Research Institute

RAS ID

34060

Funders

Prostate Cancer Foundation of Australia

Comments

Dunn, J., Ralph, N., Green, A., Frydenberg, M., & Chambers, S. K. (2020). Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices. Psycho‐oncology, 29(3), 557-563. https://doi.org/10.1002/pon.5306

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Link to publisher version (DOI)

10.1002/pon.5306