Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices
Abstract
Objective: To describe contemporary consumer experiences and priorities of prostate cancer survivorship to inform the development of survivorship guidelines. Method: In a cross-sectional qualitative design, semi-structured interviews were undertaken with fifty prostate cancer support group leaders (50% response) across urban and rural/regional Australia. An interpretative phenomenological approach was used to identify participants' experiences and priorities of survivorship. Results: Three themes were identified for informing the development of prostate cancer survivorship guidelines: (a) the Experience of Diagnosis and Treatment, (b) Priorities for Survivorship and (c) Mechanisms for Support. Four priorities for prostate cancer survivorship were: delivering person and men-centred care; improving communication; improving care coordination; and facilitating access to care. Mechanisms for support were as follows: advocacy; peer support; prostate cancer specialist nurses; and communication training for health professionals. Conclusions: The lack of progress in changing prostate cancer survivorship outcomes for men will become increasingly problematic as this patient population group grows. Co-production provides a way forward to ensure relevance and accessibility for future survivorship initiatives. © 2020 John Wiley & Sons, Ltd.
Document Type
Journal Article
Date of Publication
1-1-2020
Publication Title
Psycho-Oncology
Publisher
John Wiley and Sons Ltd
School
Exercise Medicine Research Institute
RAS ID
34060
Funders
Prostate Cancer Foundation of Australia
Copyright
subscription content
Comments
Dunn, J., Ralph, N., Green, A., Frydenberg, M., & Chambers, S. K. (2020). Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices. Psycho‐oncology, 29(3), 557-563. https://doi.org/10.1002/pon.5306