Document Type
Journal Article
Publication Title
Journal of Applied Research in Intellectual Disabilities
Volume
37
Issue
4
PubMed ID
38654612
Publisher
Wiley
School
School of Business and Law / School of Nursing and Midwifery
Funders
Open access publishing facilitated by Southern Cross University, as part of the Wiley - Southern Cross University agreement via the Council of Australian University Librarians
Abstract
Background: The introduction of the National Disability Insurance Scheme (NDIS) in Australia in 2013 promised significant improvements in the lives of adults with intellectual disabilities. Although the scheme enables support, there are challenges associated with establishing eligibility and administering funds. This scoping review explored perceived barriers and enablers to effectively utilising the NDIS for adults with intellectual disabilities and their families. Method: A scoping review of the empirical literature on the NDIS and intellectual disabilities included nine studies in this review. These papers were subjected to thematic analysis and the findings were presented as a narrative synthesis. Results: The key themes identified were: (1) Limited understanding of the NDIS process; (2) Language use and capacity assumptions; (3) Unrealistic goals and progress, and difficulty utilising plans; (4) Expectations of families and associated workloads; (5) Opening up opportunities not previously available; (6) Knowledgeable planners who actively seek to involve adults and their families. Conclusion: Although qualitative studies demonstrate that adults with an intellectual disability and their families are largely satisfied with the increased opportunities the NDIS has afforded them, there are various areas in which accessibility to services can be improved. In order for the NDIS to continue to improve, the results from this scoping review underline the need for adults with an intellectual disability and their support systems to have their voices heard and be utilised.
DOI
10.1111/jar.13240
Creative Commons License
This work is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 4.0 License.
Comments
Zubrinich, A., de Jong, G., Salehi, N., & Lakeman, R. (2024). Perceived barriers and enablers to utilising the Australian national disability insurance scheme for adults with an intellectual disability and their families: A scoping review. Journal of Applied Research in Intellectual Disabilities, 37(4), article e13240. https://doi.org/10.1111/jar.13240